Is EDS a bad thing?

Is Ehlers-Danlos syndrome bad

Vascular Ehlers-Danlos syndrome can weaken your heart's largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture.

Does EDS get worse as you age

However, symptoms may become more severe as patients age and joints that have been dislocated multiple times become painful. Everyone's bones become weaker with age. In EDS patients with hypermobile joints, weakening bones can make the symptoms of the disease more severe as it progresses.

What is EDS life expectancy

The median life expectancy for individuals with vascular EDS is around 48 years. Patients with kyphoscoliotic EDS — whose hallmark is a sideways curvature of the spine in combination with a hunched back — also may have a reduced life expectancy.

How rare is EDS

Signs and symptoms of EDS may become apparent during childhood. However, depending upon the form and severity, age of diagnosis varies widely. Reported estimates for the incidence of all EDS types range from 1/ 2,500 to 1/5,000 births. hEDS is estimated to affect 1/10,000-1/15,000.

Can people with EDS live a full life

EDS cannot be 'cured' but many people learn over time how to control it and live full and active lives. The day-to-day management of most types of EDS is based around the right kind of exercise, physiotherapy and pacing. In addition you should seek referrals for any associated conditions you may have.

Do people with EDS age better

Yes, Ehlers-Danlos syndrome can make you look younger. The patients with EDS do not have any wrinkles as the collagen is additionally stretchy. This makes their skin soft and young.

How do people with EDS feel

Many have seen 10 or more doctors and some of those suggested their symptoms were psychosomatic. EDS is considered an “invisible” illness: patients look healthy but struggle with pain and fatigue that can make simple tasks like cooking or getting dressed feel unmanageable.

Can you live a full life with EDS

Are people with EDS disabled

The answer is that Ehlers-Danlos Syndrome (EDS) can be a disabling condition, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.

Does anyone famous have EDS

Jameela Jamil joins a number of other celebrities who have spoken about living with Ehlers-Danlos syndrome. One influencer attempting to raise awareness about EDS and related conditions such as POTS (Postural tachycardia syndrome) is lesbian YouTuber Jessica Kellgren-Fozard.

Do people with EDS look younger

Does EDS Make You Look Young Yes, Ehlers-Danlos syndrome can make you look younger. The patients with EDS do not have any wrinkles as the collagen is additionally stretchy. This makes their skin soft and young.

Does EDS go away

EDS can make your joints loose and your skin thin and easily bruised. It also can weaken blood vessels and organs. There's no cure for EDS, but the symptoms can often be treated and managed.

What can people with EDS not do

Contact sports, such as soccer, football, and rugby, generally should be avoided. High-impact activities also should be avoided by most patients with EDS. These include running and basketball. Baseball, which requires a lot of running, also should be mostly avoided.

Are most people with EDS skinny

No. We come in all shapes, sizes, nationalities, and genders. Follow us for more EDS/HSD Myths and Facts during Ehlers-Danlos Awareness Month!

Are hypermobile people tall

Marfanoid hypermobility syndrome is a genetically distinct generalized heritable connective tissue disease with features of both MFS and EDS. MFS encompasses skeletal, ocular, and cardiovascular defects. The patient is often, but not invariably, exceptionally tall, and the skeletal proportions are abnormal.

Can I live a normal life with EDS

General: EDS affected persons can live like normal people; however, they may feel some constraints in their mobility. A person affected with vascular EDS is prone to serious fatal complications like tearing open of a main blood vessel or organ.

Can people with EDS have kids

The impact of EDS on fertility depends on the type and severity of the disease. Some patients may have difficulty conceiving while others may have no issues. According to a survey posted on the Ehlers-Danlos National Foundation website, the incidence of infertility was reported to be 43.3% among the 1,352 responders.

Does Billie Eilish have Ehlers

An article in Vogue shares: “Years of subsequent lower body injuries, and just as many misdiagnoses, increased the alienation Eilish felt in her own skin before she discovered, through her movement coach, Kristina Cañizares, that she has a condition called hypermobility.” [Eilish has not formally been diagnosed with …

Does everyone with EDS have autism

Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance.

Does EDS affect breasts

Raynaud's syndrome is also very common in EDS [27, 28] and can contribute to nipple and breast pain.

How painful is EDS

Chronic pain in the Ehlers–Danlos syndromes, especially in hypermobile EDS, is very common and may be severe. It may be widespread or it may be limited to one area of the body such as a limb. Headaches and gastrointestinal discomfort can occur as well as joint, muscle and nerve pain.

Are people with EDS smart

Students with EDS are normally very intelligent, even when accompanied with developmental disorders such as Autism, but they have serious struggles at school. Pain, writer's cramp, and associated hypermobility of the joints can affect student performance, resulting in accusations of the student being lazy.

Do EDS patients look younger

Yes, Ehlers-Danlos syndrome can make you look younger. The patients with EDS do not have any wrinkles as the collagen is additionally stretchy. This makes their skin soft and young.

Is it OK to be hypermobile

Many people with hypermobile joints don't have any problems, and some people – such as ballet dancers, gymnasts and musicians – may actually benefit from the increased flexibility.

Is hypermobility good or bad

In most people, hypermobility doesn't cause any pain or medical issues. However, for some people, hypermobility causes joint pain, joint and ligament injuries, tiredness (fatigue), bowel issues and other symptoms. Joint hypermobility syndrome is most common in children and young people.